Tunde's Hope Story

TÜnde was diagnosed with Idiopathic intracranial hypertension (IIH) around a year before starting the Hope Programme.  She had just been trying to deal with all her symptoms and appointments. TÜnde heard about the course from support group IIH UK “I wanted to find out what I can do to cope better” she says. “How should I do things differently?”

So what did TÜnde learn? “For me it was really beneficial. How to cope with stress and what to do when I’m feeling over-loaded.” But the chance to interact with other people who live with IIH was very helpful, too, she explains. “It was good to see how other people were coping. Learning from people who were doing better than me – and realising that I was doing better than others!” She continues “It’s just really good to be in touch with other people with IIH. To know that you’re not alone.”

The online format worked well for TÜnde, too. “If I was having a busy week at work and fell behind, it didn’t matter – I could catch up later”. And the structured sessions worked well for her. “It’s not like a Facebook group, where all you get is people’s worst case scenarios and everyone sharing scary stories.”  So how is Hope different? “It has the right balance. Living with IIH is not just bad. Hope lets you find you own balance.”

And now that TÜnde has finished the Hope for People with IIH course, what does the future hold for her? “I know how to push to grow myself” she says. “With Hope, I can grow further”.